Tuesday, June 21, 2016

quiet. but of course not.

Shhh it's so quiet isn't it? I mean over here. So quiet...I've been m.i.a. Sooo quiet.

Okay, it's quiet here, but not really because, in real life, it's been busier than it's ever been. Things with the house - like general upkeep, some gardening stuff, a new garage is happening, the kids and school and sports and meetings and therapy and well, life in general. 

So. I haven't been sewing much at all lately. And now, school is almost out for summer holidays. Which means the kids are home all day. every day. and busy days (with many rules) will be in full swing. But today? Well...

This morning Ozzie had his dominant hand casted in preparation for the constraint camp* he will attend in August. We found out there will be a lot of the same kids as last year which I think eased Ozzie's nerves. Together with one of the occupational therapist camp leaders, the three of us discussed and set some goals that we hope the constraint camp will help him to achieve. As we left, I could tell the dread had left, he didn't say one bad thing about the camp or about having to go back to school. 

I've noticed a lot lately, in various meetings regarding Ozzie is that his input is invaluable. He wants to be big, make decisions and be as independent as (safely) possible. With our guidance and his strength and perseverance, he'll get there, it may just take a little bit longer. 

So.
Ice cream cone.



*Constraint camp: casting the "good" hand to work on improving the function of the weaker, less used hand.

















more info here:

Tuesday, January 5, 2016

january 2016.

happy new year folks!!

the last few months of 2015 I was pretty busy between different craft shows, coming up with new stock and doing custom orders. now that the holidays have passed and the gifts have been given, i'm excited to share what I have been up to: felt food is always a staple, especially the donuts! moose and deer heads were well received. 2 custom orders for pillows, the images were created from children's drawings! a lovely quilt for a new baby boy, Elliott. some lovely hand sewn ornaments for the kids' teachers. and of course, the hilarious hot dog for a boy who digs moustaches and ketchup. 

cheers to 2016 - can't wait to get back into my sewing room and see what I come up with this year. follow along on instagram.com/milesandozzie or on facebook













Thursday, October 29, 2015

The Assembly Christmas Craft Show!

school is back in session. it's back to sewing business as usual.
i'll be a part of the assembly's awesome christmas craft show, Saturday November 7th from 10am-4pm at the Burlington Art Gallery!

lots of felt food, some new stuffies and creations including moose, deer and unicorns! hope to see you there!








Wednesday, August 12, 2015

botox round 2.

ozzie had botox injections today at mcmaster children's hospital, spasticity clinic.

to say he was the toughest almost 6 year old i know? understatement of the year. 
was he nervous? yes.
was his heart beating a mile a minute? yes (i heard it).
did he charm all the doctors and nurses he met? yes. 
he tried to charm one of the receptionists but she has a hard nut to crack. oh well, can't win them all. 
did he have 4 injections? yes. left and right hamstring, right gastroc
did he earn a few more bravery beads? yes he did (5 more new ones).
did he cry? not even one little tear.
new lego set? you betcha.
yogurty's for an after dinner treat? yes please. 

i can't say enough wonderful things about the staff and doctors we deal with at mcmaster and chedoke. they make each place such a welcoming environment that ozzie is not afraid of going to his appointments. which has helped immensely and of course, so does the kid. i don't know if it's because of just who he is, or because in the last 4 years these appointments have become his normal. i don't know. but i do know that today he did great, was super patient and courageous through it all. i'm sure with butterflies in his tummy just like his mama. 

he was happy all afternoon: we went for a walk and visited friends (thanks Steph!), he built his new lego set, ran round in the yard with Miles and of course he had to walk over to Yogurty's for froyo. i suppose a lot of these things have now become "botox traditions." so be it.

thanks to those who sent their love and thoughts via instagram. 
ozzie's doing well and i'm breathing a sigh of relief.

next botox appointment: feb 10, 2016.


for interest sake: you can read more about the use of botox in kids with cp here: https://www.canchild.ca/en/canchildresources/botox.asp

#cerebralpalsy #specialneeds #botox #TEAMOZZIE #highTEN


Tuesday, February 10, 2015

#TeamOzzie

every time a big appointment happens for my ozzie, for days and even weeks beforehand, my stomach is in knots, i hide the tears and wonder a lot about the whys.

i try to focus on the short term pain for long term gain. focus on the love. focus on the boy.
and that's what i'm trying to do right now.

this 5 year old boy has seen a number of {awesome} specialists in the last 3.5 years, some on an ongoing basis, including:
physiotherapists.
occupational therapists.
an orthotist.
developmental paediatricians.
paediatric orthopaedic surgeon.
a neurologist.
a geneticist.


he has had an mri.
he has had X-rays of his hips.
he did constraint therapy.
he frequents the prosthetics and orthotics department.
he has gone to gait analysis.
he has been to the spasticity clinic.

ozzie has cerebral palsy.
and his diagnosis doesn't define him.

he is a little boy who loves:
lego.
playing minecraft.
touching your earlobes.
drawing firetrucks, boats and creepers.
playing on the beach.
watching Stampy on youtube.
angry birds on the iPad.
star wars.
his friends.

he has played tball the last 2 summers and plans to play soccer this year. he goes to skating lessons, with his brother on the ice with him, encouraging him and cheering him on. and the day he learned to stand up on the ice? i was in tears on the sidelines, that was MY christmas morning. he loves to run. he will swim, as long as he can touch the bottom. he has started piano lessons. he loves to dance. and loves jokes about farts.

he has "a whole world he visits at night - with a secret lab!"
he has a job at a sushi restaurant making the sushi.
he has already had so many girlfriends that i can't keep track who is his girlfriend and who is just a friend.
he also has a really great imagination, that knows no limits.

he also knows the ins and outs of Chedoke Hospital in hamilton, where he goes for pt + ot as well as the prosthetics and orthotics department. he has to, "use the force" to open up the front doors, he loves the fish tank downstairs and knows where the sticker treasure box is. he loves the underground parking at McMaster Children's Hospital and the the spiral wishing well coin funnel thingy. there is always a request for a snack, at either locations and he'll almost always ask to get something for his brother too.

the number of appointments he's had the last 6 months could easily rival his first 2-3 years combined. he's a growing boy and growth is great and he's healthy! but growth in a child with cerebral palsy presents a few challenges. a child, like ozzie, with spastic muscles (tightness) may find it harder to move. what has been happening to ozzie's legs, is this:

the spastic muscles are
tight - too active and unable to relax much
stiff - too much tone or resistance

when ozzie walks, the brains sends many signals to the muscles. it tells some muscles to be active and tells others to relax. spasticity occurs when the signals telling muscles to relax are blocked. and this blockage is caused by damage to the nerves in the brain (cp).
*cited from mcmaster children's hospital

he has ongoing physiotherapy.
he uses 2 AFOs (ankle-foot orthosis) his "tall brace"
he uses a SMO (supra malleolar orthosis) his "short brace"
stretching out his muscles using his gaitor, his "night brace"
but still
spastic muscles.

which brings us to his next big appointment.

botox injections.

why botox? because when botox is injected, it blocks a chemical signal between the nerve and the muscle which then prevents the muscle from contracting and relieves spasticity. we're hoping to see results in 7-14 days after the procedure and they continue to last for several months. we hope it helps him do his everyday activities better and that he is just simply, able to move better.

i have his bag almost all packed and ready for tomorrow:
boogie board.
roby, his new custom robot stuffy.
ipad.
star wars lego set for his bravery.

so if you don't mind, please think good thoughts for him.
and well, me too.
i need as much of them as i can get.

xxoo
#TeamOzzie