Thursday, January 5, 2012

oh little puzzle. almost solved.

the progress with ozzie continues folks and we couldn't be more pleased. in the almost two months since i last posted an update about ozzie, lots has happened. he continues his physio and occupational therapies every three weeks or so, always impressing his therapists. we haven't seen our ot in a while, so we're looking forward to seeing her this week.

both miles and ozzie received lots and lots of little (original) lego as well as the next size up, duplo/mega blocks for christmas and these? they are the most played with toys by far. putting the tiny blocks together is really awesome for getting ozzie's hands working together. they are not so fun when you step on a random piece that got kicked or thrown out of the designated lego area of our living room. however, it keeps them occupied for hours, so i shouldn't really complain. other awesome pt/ot gifts included lots of puzzles, a ball hopper, a velcro ball game, little figures and lots of cars. markers, crayons and colouring books. the markers and crayons are larger so his hands grasp them differently than "normal" markers. we're having fun over here!

we're looking forward to getting ozzie on his new radio flyer scooter too. thanks gram and grandad! so either in the garage or driveway on a warm-ish day, or we'll wait it out til the weather is much nicer. but still, he has fun riding the scooters at pt, so we figured this would be an awesome addition at our house too.

there's also a beautiful ice rink in our backyard. the weather looks to be going up a few degrees so it's not quite ready to skate on yet. ozzie wants to though, because miles skates and plays hockey. we do have a pair of bob skates ozzie can strap onto his boots. it's worth a shot and i'll even go out there with them even though i despise old man winter.

afo update:
ozzie's first day with his ankle foot orthotic was, hmm. well it was stressful and heartbreaking and i was glad to see bedtime that day. i'm sure he was too. it's been almost a month since he's had it and he's such a little champion. doesn't mind it one bit anymore except for the few times he tried to throw it down the stairs. but that's not very often anymore. so PHEW.




developmental pediatrician update:
back in december we received a call from our developmental pediatrician's office. they had an opening the following day due to a cancellation. instead of waiting until the end of march of this year, we accepted and met with the doctor. up until that point, we had already received many different clues/pieces to the puzzle that is ozzie. we did a lot of our own research, joined forums for parents with kids with hemiplegia, and we put our own pieces together. this appointment was well, lacking a bit of lustre. i had this silly notion we'd go in there and the doctor would give us some miraculous prescription and ozzie would be all better. no big deal. well. that wasn't exactly the case.

the doctor did give us some new information and a finally, an actual diagnosis - the hemiplegia is due to cerebral palsy. the cerebral palsy came about because of the way his brain developed abnormally, not due to a stroke like we had originally thought. we're still unsure if at this point it was just one of those things that happens or if it is in fact genetic. we could get genetic counselling if we want in the future. the left side of his brain that abnormally developed is affecting both gross and fine motor skills and the result is his right sided hemiplegia.

this doctor was very nice, concise and knowledgeable - obviously - however! he usually deals with kids who have issues beyond what ozzie's issues are. he's not dropping us as a patient, but within a year or so he'll transfer us to a different doctor who is both a developmental pediatrician and neurologist. so. that? a little frustrating, seeing as how that second doctor is who our pt wanted us to see all along. sigh. but i know it's just a minor blip in the scheme of things and seeing as how we've become accustomed to waiting, the next doctor's visit will be here before we know it.

puzzle almost solved. but more questions:

  1. seizures. because this is a brain issue, i brought up the topic of seizures and wondered about ozzie's future. there is a possibility of seizures happening and we'll deal with them, if and when they happen. 
  2. school. this one is still a while away - september of 2013, but it's better to be proactive right? i'm already doing research on the boys' schoolboard to get an understanding of what our plan of action will be. mainly we'll be setting up a meeting to speak with the principal this time next year, to make them aware of ozzie's issues and we'll go from there.


so for now, our little puzzle isn't quite yet solved. it's like those few pieces missing are hiding under a cabinet somewhere. we'll figure it all out soon enough, but in the meantime, we're enjoying that little boy instead.


2 comments:

  1. Seeing his frustrated face and then his I Can Do It face are just so amazing. It warmed my heart.

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  2. Duder is tough and so sweet. I can't wait to finally meet him in person!! I will come bearing Lego. ;) I'm glad you guys are getting some more answers, even if it's not as quickly as you'd like...you'll get all the pieces. Even if you have to shuffle some cabinets around to do do so.

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